Palliative Care Experience Survey 2020

Consultation Process

Now Closed

This online engagement was hosted on YourSAy from 15 September to 31 December 2020. Below is a record of the engagement.

Help us develop the Statewide Palliative Care Services Plan 2021-26 and provide you with an improved palliative care experience

What’s being decided?

We want to know your experiences in palliative care during 2020, either as a patient, unpaid carer or health professional.

Palliative care is focused on managing symptoms which may have occurred on their own, or while receiving other medical treatments. It can be provided from a palliative care team, your General Practitioner, in a hospital or at a Residential Care facility.

COVID 19 has significantly impacted the way palliative care is provided and experienced. We want to understand what is working well and how we can improve the delivery of palliative care in South Australia.

Whether you are:

• a patient who has been receiving palliative care in 2020
• an unpaid carer who has provided palliative care in 2020.
• a health professional or volunteer who has provided palliative care in 2020.

We would like to hear from you.

Get involved

To have your say:

• Complete the online surveys
• Email us your feedback at rama.ramanathan@sa.gov.au
• Call us on 0401613878 during business hours.

How can your input influence the decision?

Your feedback will inform the development of the Statewide Palliative Care Services Plan 2021-2026.

What are the next steps?

Summary results from the survey will be analysed by the Statewide Palliative Care Clinical Network within the Commission on Excellence and Innovation in Health (CEIH) to inform the development of the Statewide Palliative Care Services Plan 2021-2026.

Once developed, the Statewide Palliative Care Services Plan 2021-2026 will be available for comment on this and the CEIH websites.

Contact details

For general inquiries, please email us at rama.ramanathan@sa.gov.au or call us on 0401613878 during business hours (9am to 5pm, weekdays).

Closing date: 5pm, Thursday 31 December 2020

Background

Now Closed

This online engagement was hosted on YourSAy from 15 September to 31 December 2020. Below is a record of the engagement.

The Statewide Palliative Care Clinical Network includes all the health professionals, health service organisations, Palliative Care SA, consumers and carers who work collaboratively with the goal of achieving safe, dignified, comfortable and high quality palliative and end of life care for all South Australians.

The network operates across the continuum of care, in private and public sectors and across all Local Health Networks — both country and metropolitan. It is supported by a clinical lead, steering committee and other subcommittees or work groups that are identified as being required to undertake network priority projects.

The Clinical Network uses the following definitions when referring to palliative care or end of life care and Terminal Phase:

• Palliative care: an approach to treatment that improves the quality of life of patients and their families facing life-limiting illness, through the prevention and relief of suffering. It involves early identification and impeccable assessment and treatment of pain and other problems (physical, psychosocial and spiritual).
• End-of-life care: includes physical, spiritual and psychosocial assessment, care and treatment delivered by health professionals and ancillary staff. It also includes the support of families and carers, and care of the patient’s body after their death. People are ‘approaching the end of life’ when they are likely to die within the next 12 months.
• Terminal Phase: Death is likely within days.