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Finding it hard to access palliative care

I have been really disappointed that it has been so hard to find practical help at home as a younger person with terminal cancer in my 40’s. I’ve been told by more than one professional that if I was over 65 there would be no problem finding me help. I have been told I am ineligible for pallative care because it is the chemo making me so sick, not the cancer, even though I am dangerously ill alone at home after chemo for at least a week. I have ended up needing to call ambulances and end up in ED more than once and sometimes hospital admissions. It seems crazy to me that a younger person cannot access help at home, especially when you live alone. It has proven to be extremely elusive. Could I just say this greatly increases an advanced cancer sufferers feelings of depression, abandonment and despair. You really get the feeling some people don’t care if you are too sick at home to even function,. I’d really like to see palliative care help at all stages of a terminal illness and not differentiate between chemo side effects and the actual cancer. Overall it is cancer and the needed treatment as a result. If also shouldn’t be the case that a cancer sufferer that is under 65 cannot access desperately needed home support.

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