SA Health Palliative Care Project

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Consultation has concluded. Thanks for your contributions.

You can read a summary of key outcomes in the Updates section below.

We are developing a new and innovative Palliative Care Services Plan and Model of Care Framework for South Australia and we would like your input. 


What is being decided?

We are seeking input from the South Australian public and palliative care stakeholders to ensure that the new Palliative Care Services Plan and Model of Care Framework can meet the needs of our community and support us to deliver on the vision of the Palliative Care Strategic Framework 2022-2027.

“All South Australians, their families and carers have access to and receive the best possible end of life and palliative care that places the person at the centre of care and supports them to live and die well in accordance with their individual needs, wishes, values and preferences.”

Background

What has been done so far?

South Australia’s Palliative Care Strategic Framework 2022-2027 was launched in December 2021 and contained:

  • a vision and goals for the palliative care service system in South Australia 
  • four priority areas 
  • specific actions that we will commit to over the next 5 years to shape the palliative care system so that more people can die well in South Australia.

Key deliverables identified in South Australia’s Palliative Care Strategic Framework 2022-2027 are a statewide services plan and model of care framework which will inform improvements and investment in SA Health administered palliative care services over the next five years. This will deliver best practice holistic and high quality services, with equitable and easy access for all palliative care consumers.

One of the first steps in this work, was to better understand current palliative care service delivery and access across SA, including any opportunities for improvement. The SA Specialist Palliative Care Current State Analysis report was completed in March 2023, informed by contributions and stories posted on this YourSAy page by the South Australian public, review of published documentation, data analysis, stakeholder interviews, and a series of case study discussions with ten palliative care consumers and/or their families and carers.

The Current State Analysis Report - Key Findings and Recommendations paper presents a summary of the analysis.

The analysis reveals that within South Australia we have a palliative care system that is dedicated to delivering high quality services and high-quality outcomes for South Australians with life-limiting illnesses. Further improvements in equity, access to services, workforce support, data collection and funding can have a positive impact on future demand and consumer and clinician experience.

The current state analysis identifies 11 opportunities for action within SA Health’s remit for the next stage of the project. These opportunities align with the priority actions of South Australia’s Palliative Care Strategic Framework 2022-2027, and aim to support current and future population needs.


What are the next steps?

SA Health in partnership with the Statewide Palliative Care Clinical Network is developing an action plan in response to the current state analysis recommendations. The action plan will be endorsed later in the year.

Implementation of the action plan and ongoing work to develop the services plan and model of care framework will continue to be informed by the narratives and experiences of South Australia’s palliative care consumers and the community. Feedback will be sourced through the project’s consultation processes including a new YourSAy page.

If you have a enquiry about this project, please email Lorraine Scorsonelli (Project Manager), at lorraine.scorsonelli@sa.gov.au.


More information on palliative care

If you would like to know about South Australia's palliative care services, please visit the SA Health website or visit Palliative Care SA.

You can read a summary of key outcomes in the Updates section below.

We are developing a new and innovative Palliative Care Services Plan and Model of Care Framework for South Australia and we would like your input. 


What is being decided?

We are seeking input from the South Australian public and palliative care stakeholders to ensure that the new Palliative Care Services Plan and Model of Care Framework can meet the needs of our community and support us to deliver on the vision of the Palliative Care Strategic Framework 2022-2027.

“All South Australians, their families and carers have access to and receive the best possible end of life and palliative care that places the person at the centre of care and supports them to live and die well in accordance with their individual needs, wishes, values and preferences.”

Background

What has been done so far?

South Australia’s Palliative Care Strategic Framework 2022-2027 was launched in December 2021 and contained:

  • a vision and goals for the palliative care service system in South Australia 
  • four priority areas 
  • specific actions that we will commit to over the next 5 years to shape the palliative care system so that more people can die well in South Australia.

Key deliverables identified in South Australia’s Palliative Care Strategic Framework 2022-2027 are a statewide services plan and model of care framework which will inform improvements and investment in SA Health administered palliative care services over the next five years. This will deliver best practice holistic and high quality services, with equitable and easy access for all palliative care consumers.

One of the first steps in this work, was to better understand current palliative care service delivery and access across SA, including any opportunities for improvement. The SA Specialist Palliative Care Current State Analysis report was completed in March 2023, informed by contributions and stories posted on this YourSAy page by the South Australian public, review of published documentation, data analysis, stakeholder interviews, and a series of case study discussions with ten palliative care consumers and/or their families and carers.

The Current State Analysis Report - Key Findings and Recommendations paper presents a summary of the analysis.

The analysis reveals that within South Australia we have a palliative care system that is dedicated to delivering high quality services and high-quality outcomes for South Australians with life-limiting illnesses. Further improvements in equity, access to services, workforce support, data collection and funding can have a positive impact on future demand and consumer and clinician experience.

The current state analysis identifies 11 opportunities for action within SA Health’s remit for the next stage of the project. These opportunities align with the priority actions of South Australia’s Palliative Care Strategic Framework 2022-2027, and aim to support current and future population needs.


What are the next steps?

SA Health in partnership with the Statewide Palliative Care Clinical Network is developing an action plan in response to the current state analysis recommendations. The action plan will be endorsed later in the year.

Implementation of the action plan and ongoing work to develop the services plan and model of care framework will continue to be informed by the narratives and experiences of South Australia’s palliative care consumers and the community. Feedback will be sourced through the project’s consultation processes including a new YourSAy page.

If you have a enquiry about this project, please email Lorraine Scorsonelli (Project Manager), at lorraine.scorsonelli@sa.gov.au.


More information on palliative care

If you would like to know about South Australia's palliative care services, please visit the SA Health website or visit Palliative Care SA.

Share your story

Please use this space to share the stories of your experiences with the palliative care system. 

Please outline within your story whether you are a: 

  • person with a life limiting illness,
  • family member or friend
  • paid carer,
  • clinician, or
  • other

Your story will help us to build an understanding of the perspectives of the public and the experiences being had.

Please remember to remain respectful and do not include any information that may compromise the privacy of yourself or another.

Thank you for sharing your story with us.
CLOSED: This discussion has concluded.
  • Share Multiple experiences on Facebook Share Multiple experiences on Twitter Share Multiple experiences on Linkedin Email Multiple experiences link

    Multiple experiences

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    In 2019/20 I supported my mother through the Central Northern Adelaide Renal and Transplantation Service' supportive care service to reduce the symptoms of chronic kidney disease whilst providing palliative care at home through the Calvary Palliative Home Care Service. While the CNARTS focus was on my mother's care the service did not consider the ongoing impact on my father, who was her primary carer, and link him to services to support his needs. Unfortunately my mother passed just as COVID-19 hit which meant that my father, and our family, were not able to access grief and bereavement support which led... Continue reading
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    Support in palliative care

    by Justeen Fisher, over 1 year ago
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    Mental Health & Palliative Care

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    Knowing where and what the support is

    by Penny Gale, almost 2 years ago
    One of my closest friends died earlier this year. She was the first of my friends to die. 3 months later a second friend passed. I did not know where to go for support. Being a friend rather than family diminishes your ability to get involved, you don’t have any rights as the family’s grief is viewed as more important. Greater promotion of ways to cope and grief in mainstream media would be a positive step.




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    End-of-life Doula care.

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    I'm an end-of-life doula on Kangaroo Island. Living on an island presents paradoxes - we love the isolation from the mainland, but we get frustrated by being isolated from the mainland. We need to accept well-meaning FIFO services that usually have a high staff turnover. We get stuck in the turnstile of having to start our story from the beginning, again, as yet a new face sits poised to take down notes. We appreciate that services are trying their best but despair at the lack of deep understanding of the local context and community.

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