SA Health Palliative Care Project

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We are developing a new and innovative Palliative Care Services Plan and Model of Care Framework for South Australia and we would like your input.

What's being decided?

We are seeking input from the South Australian public and palliative care stakeholders to ensure that the new Palliative Care Services Plan and Model of Care Framework can meet the needs of our community and support us to deliver on the vision of the Palliative Care Strategic Framework 2022-2027.

All South Australians, their families and carers have access to and receive the best possible end of life and palliative care that places the person at the centre of care and supports them to live and die well in accordance with their individual needs, wishes, values and preferences.”

Background

What has been done so far?

South Australia’s Palliative Care Strategic Framework was launched in December 2021 and contained:

  • a vision and goals for the palliative care service system in South Australia
  • four priority areas
  • specific actions that we will commit to over the next 5 years to shape the palliative care system so that more people can die well in South Australia

What is happening now?

Following the successful launch of the Strategic Framework, we are now developing a Palliative Care Services Plan and Model of Care Framework for South Australia.

This Services Plan and Model of Care Framework will make recommendations regarding how SA Health can continue building and improving palliative care services in South Australia over the next 5 years.

We are keen to hear about how the health system works for people with a life limiting illness receiving palliative care or for family members and carers providing support, as well as from those working within the palliative care system.

For information on what is a Services Plan, what is a Model of Care and other common questions, please navigate to the FAQs section.

Get involved

We are committed to ensuring the Services Plan and Model of Care Framework are representative of the needs and perspectives of the South Australian population and so we need your input.

This page will be active for the entirety of the project, with regular updates to be shared and additional opportunities for engagement to be announced.

Have your say by:

  • Sharing your story
  • Posting an idea
  • Submitting a question
  • Showing us where you're from on the map

More information on the purpose of each of these opportunities for engagement can be found in the individual modules. Please remember to provide your input in a respectful manner and with consideration of yours and other people’s privacy.

What are the next steps?

All entries to this YourSAy page via stories, ideas, questions and locations will be compiled and used to inform the direction and content of the Palliative Care Services Plan and Model of Care.

This page will be updated regularly, however if you are interested in providing more direct input or if you have any questions, please contact Hannah Owen, Project Manager, at Hannah.owen2@sa.gov.au or on 08 7117 9964.


More information on palliative care

If you would like to know about current palliative care services in South Australia please go to the SA Health website or visit Palliative Care SA.

We are developing a new and innovative Palliative Care Services Plan and Model of Care Framework for South Australia and we would like your input.

What's being decided?

We are seeking input from the South Australian public and palliative care stakeholders to ensure that the new Palliative Care Services Plan and Model of Care Framework can meet the needs of our community and support us to deliver on the vision of the Palliative Care Strategic Framework 2022-2027.

All South Australians, their families and carers have access to and receive the best possible end of life and palliative care that places the person at the centre of care and supports them to live and die well in accordance with their individual needs, wishes, values and preferences.”

Background

What has been done so far?

South Australia’s Palliative Care Strategic Framework was launched in December 2021 and contained:

  • a vision and goals for the palliative care service system in South Australia
  • four priority areas
  • specific actions that we will commit to over the next 5 years to shape the palliative care system so that more people can die well in South Australia

What is happening now?

Following the successful launch of the Strategic Framework, we are now developing a Palliative Care Services Plan and Model of Care Framework for South Australia.

This Services Plan and Model of Care Framework will make recommendations regarding how SA Health can continue building and improving palliative care services in South Australia over the next 5 years.

We are keen to hear about how the health system works for people with a life limiting illness receiving palliative care or for family members and carers providing support, as well as from those working within the palliative care system.

For information on what is a Services Plan, what is a Model of Care and other common questions, please navigate to the FAQs section.

Get involved

We are committed to ensuring the Services Plan and Model of Care Framework are representative of the needs and perspectives of the South Australian population and so we need your input.

This page will be active for the entirety of the project, with regular updates to be shared and additional opportunities for engagement to be announced.

Have your say by:

  • Sharing your story
  • Posting an idea
  • Submitting a question
  • Showing us where you're from on the map

More information on the purpose of each of these opportunities for engagement can be found in the individual modules. Please remember to provide your input in a respectful manner and with consideration of yours and other people’s privacy.

What are the next steps?

All entries to this YourSAy page via stories, ideas, questions and locations will be compiled and used to inform the direction and content of the Palliative Care Services Plan and Model of Care.

This page will be updated regularly, however if you are interested in providing more direct input or if you have any questions, please contact Hannah Owen, Project Manager, at Hannah.owen2@sa.gov.au or on 08 7117 9964.


More information on palliative care

If you would like to know about current palliative care services in South Australia please go to the SA Health website or visit Palliative Care SA.

Share your story

Please use this space to share the stories of your experiences with the palliative care system. 

Please outline within your story whether you are a: 

  • person with a life limiting illness,
  • family member or friend
  • paid carer,
  • clinician, or
  • other

Your story will help us to build an understanding of the perspectives of the public and the experiences being had.

Please remember to remain respectful and do not include any information that may compromise the privacy of yourself or another.

Thank you for sharing your story with us.

You need to be signed in to share your story.

All fields marked with an asterisk (*) are required.

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    not all broken legs are the same

    by Trish, 27 days ago

    My mother’s death

    I cared for my mother at home from when she was showing clear signs of dementia in 2010 until she died, in 2020.

    My mother’s death was precipitated by a fall which broke her thigh, requiring a plate to hold the bone together that extended from her knee to her hip. She was transferred to Calvary Hospital in Wakefield St for surgery, and admitted to Calvary’s orthopaedic ward to recover. She was 96 years old, had advanced dementia, and I was requesting that she receive palliative care. Nevertheless, the physiotherapist visited my mother in the morning following... Continue reading

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    Sent home and told to die of starvation

    by The Mc Dad, about 1 month ago

    I was with my lovely wife for 20 years. We were 16 years old when we met a party in Prospect. Like all couples we had our ups and downs. Cancer had already taken enough from our family but the day we were told that my wife's small intestine had stopped working and that treatment was no longer an option. There's no solution or option. I can't imagine what was going through my wife's head. Inside I was turning all sorts of ways I couldn't say or do anything. Rachel was so strong, It's such a cruel disease not being... Continue reading

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    My story as a family member and Palliative volunteer

    by Suejacquier, about 1 month ago
    My experience comes from both as a Palliative Volunteer of 25 years And as a carer to both my parents and brother , with whom I sat with while they died.

    In the case of my brother (who passed in 2010) in the Barossa, I can only say, it was my fellow volunteers that got me through..NOT the Palliative care service. Any service in this space that only provided that service during the hours of 9-5, is appalling. I understand that there are not enough staff to cover all bases, all hours....but why not? Dying is'nt scheduled to those hours... Continue reading

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    Lisbeth

    by Lisbeth Cock, 2 months ago
    My daughter has cancer .. terminal .. how much longer ? I hope they are wrong, the latest update says before Christmas 2022. Is there help for her to die at home? She does not want to spend her last hours in a hospice.
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    No quality of life is no way to be at end of life...

    by Brigitta, 3 months ago

    The story of my sister’s cancer journey is long, but these are some situations from her experience that highlight how desperate SA is for a new model of Palliative Care.

    Complete lack of mental health support, even prior to Covid. My sister has increasingly been exhibiting psychological distress, but medical and allied health staff do not ask if she is ok or inquire about her mental health. No counselling or grief support offered at any time in 3 years, despite advanced cancer diagnosis in 2019.

    Oncologist has extremely bad communication and is very uncomfortable discussing death and dying. Oncologist is... Continue reading

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    Home away from Home

    by Virginia Summers, 3 months ago
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    It could have been better and meant much more.

    by John Arthur, 3 months ago
    My late wife suffered a dibilitating illness over a 2-3 year period. In the last 12 months of her life we received some help via Palliative Care, but we had to work hard to get it. When we finally did, the care was excellent and we were very grateful. After my wife passed away I was offered some councilling for my grief, but unfortunatley this amounted to one session only. I appreciated this very much at a very difficult time. Even though I was offered more, nothing ever eventuated and I was left to my own devices. I certainly could... Continue reading
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    Modbury Hospital Heroes

    by Brian Clements, 3 months ago
    My wife was taken into plaintive care last January at the brand new Palliative Care Unit at Modbury Hospital after a somewhat traumatic experience at another local hospital the previous month.

    The respect and treatment received by my wife was nothing short of tremendous during her final 4 days of life. Her eldest son and I were able to stay by her side for her final 36 hours (in spite of Covid restrictions on visitors). The Professor and his staff were so kind and caring both to my wife but to family as well and her son, who is an... Continue reading

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    Multiple experiences

    by Lyn Flaherty, 3 months ago
    In 2019/20 I supported my mother through the Central Northern Adelaide Renal and Transplantation Service' supportive care service to reduce the symptoms of chronic kidney disease whilst providing palliative care at home through the Calvary Palliative Home Care Service. While the CNARTS focus was on my mother's care the service did not consider the ongoing impact on my father, who was her primary carer, and link him to services to support his needs. Unfortunately my mother passed just as COVID-19 hit which meant that my father, and our family, were not able to access grief and bereavement support which led... Continue reading
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    Support in palliative care

    by Justeen Fisher, 4 months ago
    I was heavily involved in the palliative care of my Mum who has since passed away. Because she was stable during her time in hospital she had to move out to release the bed. There wasn't enough care options available for her to live with comfortably with me and instead had to go to a nursing home. There was limited pastoral care offered in hospital and no pastoral at all in the nursing home. Her mental health suffered as a result. There also needs to be more active pastoral care for families. I didn't feel comfortable seeking out anyone for... Continue reading
Page last updated: 26 Nov 2022, 01:32 PM