SA Health Palliative Care Project

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We are developing a new and innovative Palliative Care Services Plan and Model of Care Framework for South Australia and we would like your input.

What's being decided?

We are seeking input from the South Australian public and palliative care stakeholders to ensure that the new Palliative Care Services Plan and Model of Care Framework can meet the needs of our community and support us to deliver on the vision of the Palliative Care Strategic Framework 2022-2027.

“All South Australians, their families and carers have access to and receive the best possible end of life and palliative care that places the person at the centre of care and supports them to live and die well in accordance with their individual needs, wishes, values and preferences.”

Background

What has been done so far?

South Australia’s Palliative Care Strategic Framework was launched in December 2021 and contained:

  • a vision and goals for the palliative care service system in South Australia
  • four priority areas
  • specific actions that we will commit to over the next 5 years to shape the palliative care system so that more people can die well in South Australia

What is happening now?

Following the successful launch of the Strategic Framework, we are now developing a Palliative Care Services Plan and Model of Care Framework for South Australia.

This Services Plan and Model of Care Framework will make recommendations regarding how SA Health can continue building and improving palliative care services in South Australia over the next 5 years.

We are keen to hear about how the health system works for people with a life limiting illness receiving palliative care or for family members and carers providing support, as well as from those working within the palliative care system.

For information on what is a Services Plan, what is a Model of Care and other common questions, please navigate to the FAQs section.

Get involved

We are committed to ensuring the Services Plan and Model of Care Framework are representative of the needs and perspectives of the South Australian population and so we need your input.

This page will be active for the entirety of the project, with regular updates to be shared and additional opportunities for engagement to be announced.

Have your say by:

  • Sharing your story
  • Posting an idea
  • Submitting a question
  • Showing us where you're from on the map

More information on the purpose of each of these opportunities for engagement can be found in the individual modules. Please remember to provide your input in a respectful manner and with consideration of yours and other people’s privacy.

What are the next steps?

All entries to this YourSAy page via stories, ideas, questions and locations will be compiled and used to inform the direction and content of the Palliative Care Services Plan and Model of Care.

This page will be updated regularly, however if you are interested in providing more direct input or if you have any questions, please contact Hannah Owen, Project Manager, at Hannah.owen2@sa.gov.au or on 08 7117 9964.


More information on palliative care

If you would like to know about current palliative care services in South Australia please go to the SA Health website or visit Palliative Care SA.

We are developing a new and innovative Palliative Care Services Plan and Model of Care Framework for South Australia and we would like your input.

What's being decided?

We are seeking input from the South Australian public and palliative care stakeholders to ensure that the new Palliative Care Services Plan and Model of Care Framework can meet the needs of our community and support us to deliver on the vision of the Palliative Care Strategic Framework 2022-2027.

“All South Australians, their families and carers have access to and receive the best possible end of life and palliative care that places the person at the centre of care and supports them to live and die well in accordance with their individual needs, wishes, values and preferences.”

Background

What has been done so far?

South Australia’s Palliative Care Strategic Framework was launched in December 2021 and contained:

  • a vision and goals for the palliative care service system in South Australia
  • four priority areas
  • specific actions that we will commit to over the next 5 years to shape the palliative care system so that more people can die well in South Australia

What is happening now?

Following the successful launch of the Strategic Framework, we are now developing a Palliative Care Services Plan and Model of Care Framework for South Australia.

This Services Plan and Model of Care Framework will make recommendations regarding how SA Health can continue building and improving palliative care services in South Australia over the next 5 years.

We are keen to hear about how the health system works for people with a life limiting illness receiving palliative care or for family members and carers providing support, as well as from those working within the palliative care system.

For information on what is a Services Plan, what is a Model of Care and other common questions, please navigate to the FAQs section.

Get involved

We are committed to ensuring the Services Plan and Model of Care Framework are representative of the needs and perspectives of the South Australian population and so we need your input.

This page will be active for the entirety of the project, with regular updates to be shared and additional opportunities for engagement to be announced.

Have your say by:

  • Sharing your story
  • Posting an idea
  • Submitting a question
  • Showing us where you're from on the map

More information on the purpose of each of these opportunities for engagement can be found in the individual modules. Please remember to provide your input in a respectful manner and with consideration of yours and other people’s privacy.

What are the next steps?

All entries to this YourSAy page via stories, ideas, questions and locations will be compiled and used to inform the direction and content of the Palliative Care Services Plan and Model of Care.

This page will be updated regularly, however if you are interested in providing more direct input or if you have any questions, please contact Hannah Owen, Project Manager, at Hannah.owen2@sa.gov.au or on 08 7117 9964.


More information on palliative care

If you would like to know about current palliative care services in South Australia please go to the SA Health website or visit Palliative Care SA.

Share your story

Please use this space to share the stories of your experiences with the palliative care system. 

Please outline within your story whether you are a: 

  • person with a life limiting illness,
  • family member or friend
  • paid carer,
  • clinician, or
  • other

Your story will help us to build an understanding of the perspectives of the public and the experiences being had.

Please remember to remain respectful and do not include any information that may compromise the privacy of yourself or another.

Thank you for sharing your story with us.

You need to be signed in to share your story.

All fields marked with an asterisk (*) are required.

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    The best Palliative Care

    by Judith Milford, 4 days ago
    When my husband had a life limiting illness in 2019, the oncologist referred him to Palliative Care at FMC (Laurel House). My husband had decided to remain at home for his final days.

    A Palliative Care doctor and nurse, then a Health Navigator came to our home to arrange a care package for end of life. An Occupational Therapist came to see what was necessary and a special bed, wheel chair, shower chair and many other items were delivered.

    Help with showers was arranged as well as regular palliative care nurses and a physiotherapist. Palliative care volunteers were available to... Continue reading

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    Mr

    by Jon, 24 days ago
    Terminal illness
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    Palliative Care

    by B Schroeder, about 1 month ago
    About 15 years ago my younger sister died of cancer. She was 42.


    The last weeks of her life were spent in the hospice attached to the Daws Rd Repatriation Hospital.

    The staff were wonderful. She was cared for and looked after and respected, and they cared for her family as well (very hard on her children). She was kept as comfortable as possible the whole time and suffered very little.

    I have never forgotten how positive the whole experience was, under the circumstances, and how well her final days were managed. THAT has stuck in my mind as genuinely... Continue reading

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    My father slipped through the cracks of the system

    by CarolynH, about 1 month ago
    My father had end stage renal disease and had been on dialysis for ten years at Flinders Medical Centre. When he became hospitalised, the decision was made to withdraw him from treatment and so I asked his attending doctor at FMC that he be reviewed by the palliative care team to ensure that his final days were comfortable.

    The palliative care team were not notified and my father's pain was treated with intravenous morphine. I requested that he be given a syringe driver to slowly administer the morphine because the 'as needed' bolus morphine injections he was receiving were making... Continue reading

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    Let down at the most crucial time

    by Unhappy Brenda, about 1 month ago

    My name is Brenda. I worked in the aged care industry for over 20 years.

    During those years I was involved with palliative care both at work and at home. My Mother had dementia and an acquired brain injury and we, her family, had to put her into care. The last 3 years of her live was terrible. Palliative care in her nursing home was not up to standard. Fortunately, we did have the support of a palliative care in our area so at least her pain levels were addressed.

    Then a few years after that, my husband was dying... Continue reading

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    Pure Horror

    by Graham77, 2 months ago

    My wife died 31/01/2018 of breast cancer. Her terminal stages had taken 5 years after about 22 yrs 'remission'.

    In her final stage she took 12 weeks to die - 'too slowly' to be permitted to remain in the Modbury hospital palliative care ward (hospice) therefore we spent her last 7 weeks in the nearby nursing home within our retirement village.

    I say 'we' because of necessity I spent over 12 hours per day with her doing everything for her - toileting, chasing food, feeding, chasing pain medication (when her pump was running out).

    Her GP visited most evenings -... Continue reading

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    not all broken legs are the same

    by Trish, 5 months ago

    My mother’s death

    I cared for my mother at home from when she was showing clear signs of dementia in 2010 until she died, in 2020.

    My mother’s death was precipitated by a fall which broke her thigh, requiring a plate to hold the bone together that extended from her knee to her hip. She was transferred to Calvary Hospital in Wakefield St for surgery, and admitted to Calvary’s orthopaedic ward to recover. She was 96 years old, had advanced dementia, and I was requesting that she receive palliative care. Nevertheless, the physiotherapist visited my mother in the morning following... Continue reading

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    Sent home and told to die of starvation

    by The Mc Dad, 5 months ago

    I was with my lovely wife for 20 years. We were 16 years old when we met a party in Prospect. Like all couples we had our ups and downs. Cancer had already taken enough from our family but the day we were told that my wife's small intestine had stopped working and that treatment was no longer an option. There's no solution or option. I can't imagine what was going through my wife's head. Inside I was turning all sorts of ways I couldn't say or do anything. Rachel was so strong, It's such a cruel disease not being... Continue reading

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    My story as a family member and Palliative volunteer

    by Suejacquier, 5 months ago
    My experience comes from both as a Palliative Volunteer of 25 years And as a carer to both my parents and brother , with whom I sat with while they died.

    In the case of my brother (who passed in 2010) in the Barossa, I can only say, it was my fellow volunteers that got me through..NOT the Palliative care service. Any service in this space that only provided that service during the hours of 9-5, is appalling. I understand that there are not enough staff to cover all bases, all hours....but why not? Dying is'nt scheduled to those hours... Continue reading

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    Lisbeth

    by Lisbeth Cock, 6 months ago
    My daughter has cancer .. terminal .. how much longer ? I hope they are wrong, the latest update says before Christmas 2022. Is there help for her to die at home? She does not want to spend her last hours in a hospice.
Page last updated: 22 Mar 2023, 07:13 PM