SA Health Palliative Care Project

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We are developing a new and innovative Palliative Care Services Plan and Model of Care for South Australia and we would like your input.

What's being decided?

We are seeking input from the South Australian public and palliative care stakeholders to ensure that the new Palliative Care Services Plan and Model of Care can meet the needs of our community and support us to deliver on the vision of the Palliative Care Strategic Framework 2022-2027.

All South Australians, their families and carers have access to and receive the best possible end of life and palliative care that places the person at the centre of care and supports them to live and die well in accordance with their individual needs, wishes, values and preferences.”

Background

What has been done so far?

South Australia’s Palliative Care Strategic Framework was launched in December 2021 and contained:

  • a vision and goals for the palliative care service system in South Australia
  • four priority areas
  • specific actions that we will commit to over the next 5 years to shape the palliative care system so that more people can die well in South Australia

What is happening now?

Following the successful launch of the Strategic Framework, we are now developing a Palliative Care Services Plan and Model of Care for South Australia.

This Services Plan and Model of Care will make recommendations regarding how SA Health can continue building and improving palliative care services in South Australia over the next 5 years.

We are keen to hear about how the health system works for people with a life limiting illness receiving palliative care or for family members and carers providing support, as well as from those working within the palliative care system.

For information on what is a Services Plan, what is a Model of Care and other common questions, please navigate to the FAQs section.

Get involved

We are committed to ensuring the Services Plan and Model of Care are representative of the needs and perspectives of the South Australian population and so we need your input.

This page will be active for the entirety of the project, with regular updates to be shared and additional opportunities for engagement to be announced.

Have your say by:

  • Sharing your story
  • Posting an idea
  • Submitting a question
  • Showing us where you're from on the map

More information on the purpose of each of these opportunities for engagement can be found in the individual modules. Please remember to provide your input in a respectful manner and with consideration of yours and other people’s privacy.

What are the next steps?

All entries to this YourSAy page via stories, ideas, questions and locations will be compiled and used to inform the direction and content of the Palliative Care Services Plan and Model of Care.

In addition to the opportunities to contribute outlined above, we will also shortly be seeking expressions of interest to participate in a 1-hour semi structured face-to-face interview about your experience accessing palliative care for yourself or a person that you have supported (check out our Fact sheet for more information).

This page will be updated regularly, however if you are interested in providing more direct input or if you have any questions, please contact Hannah Owen, Project Manager, at Hannah.owen2@sa.gov.au.

We are developing a new and innovative Palliative Care Services Plan and Model of Care for South Australia and we would like your input.

What's being decided?

We are seeking input from the South Australian public and palliative care stakeholders to ensure that the new Palliative Care Services Plan and Model of Care can meet the needs of our community and support us to deliver on the vision of the Palliative Care Strategic Framework 2022-2027.

All South Australians, their families and carers have access to and receive the best possible end of life and palliative care that places the person at the centre of care and supports them to live and die well in accordance with their individual needs, wishes, values and preferences.”

Background

What has been done so far?

South Australia’s Palliative Care Strategic Framework was launched in December 2021 and contained:

  • a vision and goals for the palliative care service system in South Australia
  • four priority areas
  • specific actions that we will commit to over the next 5 years to shape the palliative care system so that more people can die well in South Australia

What is happening now?

Following the successful launch of the Strategic Framework, we are now developing a Palliative Care Services Plan and Model of Care for South Australia.

This Services Plan and Model of Care will make recommendations regarding how SA Health can continue building and improving palliative care services in South Australia over the next 5 years.

We are keen to hear about how the health system works for people with a life limiting illness receiving palliative care or for family members and carers providing support, as well as from those working within the palliative care system.

For information on what is a Services Plan, what is a Model of Care and other common questions, please navigate to the FAQs section.

Get involved

We are committed to ensuring the Services Plan and Model of Care are representative of the needs and perspectives of the South Australian population and so we need your input.

This page will be active for the entirety of the project, with regular updates to be shared and additional opportunities for engagement to be announced.

Have your say by:

  • Sharing your story
  • Posting an idea
  • Submitting a question
  • Showing us where you're from on the map

More information on the purpose of each of these opportunities for engagement can be found in the individual modules. Please remember to provide your input in a respectful manner and with consideration of yours and other people’s privacy.

What are the next steps?

All entries to this YourSAy page via stories, ideas, questions and locations will be compiled and used to inform the direction and content of the Palliative Care Services Plan and Model of Care.

In addition to the opportunities to contribute outlined above, we will also shortly be seeking expressions of interest to participate in a 1-hour semi structured face-to-face interview about your experience accessing palliative care for yourself or a person that you have supported (check out our Fact sheet for more information).

This page will be updated regularly, however if you are interested in providing more direct input or if you have any questions, please contact Hannah Owen, Project Manager, at Hannah.owen2@sa.gov.au.

Share your story

Please use this space to share the stories of your experiences with the palliative care system. 

Please outline within your story whether you are a: 

  • person with a life limiting illness,
  • family member or friend
  • paid carer,
  • clinician, or
  • other

Your story will help us to build an understanding of the perspectives of the public and the experiences being had.

Please remember to remain respectful and do not include any information that may compromise the privacy of yourself or another.

Thank you for sharing your story with us.

You need to be signed in to share your story.

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    Support in palliative care

    by Justeen Fisher, 11 days ago
    I was heavily involved in the palliative care of my Mum who has since passed away. Because she was stable during her time in hospital she had to move out to release the bed. There wasn't enough care options available for her to live with comfortably with me and instead had to go to a nursing home. There was limited pastoral care offered in hospital and no pastoral at all in the nursing home. Her mental health suffered as a result. There also needs to be more active pastoral care for families. I didn't feel comfortable seeking out anyone for... Continue reading
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    Mental Health & Palliative Care

    by Debbie Hage, 18 days ago

    I was hands on with my Father through his palliative care time and believe that there should be a Mental Health Ward in each Hospital in the Regional area. People who are at an age where the body is breaking down need help with their Mental Health and there are far too many nurses helping them that just dont understand Mental Health, also some Doctors. I am about to enter that phase with my Mum now at the age of 90. Mum struggles with extreme anxiety and the start of Dementia. We recently had to hospitalize her for this but... Continue reading

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    Knowing where and what the support is

    by Penny Gale, 19 days ago
    One of my closest friends died earlier this year. She was the first of my friends to die. 3 months later a second friend passed. I did not know where to go for support. Being a friend rather than family diminishes your ability to get involved, you don’t have any rights as the family’s grief is viewed as more important. Greater promotion of ways to cope and grief in mainstream media would be a positive step.




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    End-of-life Doula care.

    by KI doula, 21 days ago

    I'm an end-of-life doula on Kangaroo Island. Living on an island presents paradoxes - we love the isolation from the mainland, but we get frustrated by being isolated from the mainland. We need to accept well-meaning FIFO services that usually have a high staff turnover. We get stuck in the turnstile of having to start our story from the beginning, again, as yet a new face sits poised to take down notes. We appreciate that services are trying their best but despair at the lack of deep understanding of the local context and community.

    The 2019/2020 fires showed the community... Continue reading

Page last updated: 29 Jul 2022, 02:07 AM