Phil, You are cancer free... 5 weeks later my Dad was gone
My father was diagnosed with an incredibly small cancer 3mm in his top left lung. We were told by specialist that he didn't have any other cancer in his entire body and with surgery/removal on the 4th June, he would be able to live his life- cancer free. Surgery removal took place, blood test and we were told he was "cancer free" to go home and live his life.
3 weeks later he was still in incredible amount of pain, we took him to the hospital for tests. Doctors assured us it was an infection and that he would be better in a few days - 3 weeks later he was still in hospital and we had no further information! 3 weeks of pain with no answers, no tests. nothing!
22nd July we were told that he had cancer in 3 places and would have 2 years to live. - remembering only his lung showed up with cancer before and after surgery - was the machine/test wrong? did the doctor get it wrong.
5 weeks later my father lost is battle with cancer. 5 weeks after we were told he was cancer free after having a small 3mm tumour cut from his lung, he was gone!
during that 5 weeks, he became unresponsive to his first and only chemo session. unresponsive right in front of me. ended up in ICU and was never the same. 1000's of people have chemo daily. yet he became unresponsive?- we still never got an answer.
Palliative care losing paperwork and not registering him, me having to chase up with medication and care daily, 3 weeks of hospital stays with no answers, being told he had cancer in 1 spot - removed, cancer free and 5 weeks later died with cancer in multiple places.
the trauma and non answers that I endured as his daughter is something that I will never understand or recover from, the rollercoaster of "having cancer, its only small, we can remove it, removal, you are cancer free go and live your life, pain for 3 weeks, oh dont worry its just an infection, 3 weeks in hospital with a lot of pain, to oh you have cancer in 3 places, you have 2 years to live, 5 weeks later he was gone.
Cancer research and cancer in care in South Australia needs a huge overhaul, not only for the people suffering but as family who sit and watch on. I would love to be apart of trying to make a difference so another family doesn't have to deal with what I went through 2 years ago
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